hi bleu
i have children too and i want to say to you children that have autisim or other things are soooo specail to me.these children are so smart .people dont understand children like that,you know.do you have a hard time with some people?i use to work with specail kids like that and they amaze me so much.i learn from them.i hope i dont affend you with this reply.sometimes my words dont come out right,hug snowy
Hi Bleu!
I am the proud mom of a 5 year old with Severe Spastic quad. Cerebral Palsy. He is also low vision and non verbal. Tonight he is not feeling well and is hanging out on me! His name is Sam and many of the ladies here know a lot about him already. I know our struggles are not exactly the same, but I'm sure we can share lots! I'm d to meet you.
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Gretch
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Love each other...and take delight in honoring each other.
I sure do have a special kid, and no, you did not offend me at all Snowy. I sometimes have trouble with people when it comes to my son--but its easier to handle the older he gets. Thankfully, Daniel is a very High-Functioning child. He spends most of his day in a main-stream cl***room with related services. There is still much work to do, I expect there always will be, but I am so blessed to be his mom.
Glad to meet you both
look forward to chatting with you
Bleu
hi! i am new here. i have 2 children with adhd/sensory integration dysfunction. my son will be getting evaluated for aspergers next week because the testing that the school did shows he has the aspergers more then the sensory integration dysfunction. does anyone know what types of tests the dr's do to determine if they are aspergers? i really wish this child would get the right diagnoses. he has been diagnosed with different things and nothing is ever right.
Please dont despair--Daniel was dx PDD-NOS, he is Autistic on paper, with Sensory Integration Disorder I'm sure, and he displays Asperger like behavior. *sheesh*
The truth is, whatever they put on paper, fine--just keep ing for the services he needs.
Its a complicated process, keep advocating and read up on Aspergers and SID---only YOU know your child best.
Sam has a few different diagnoses, but none stops him from getting services he needs, though I think he needs more of what he gets. I imagine it is kind of frustrating without a for sure DX to work with. I hope the tests, which I have no experience with, get you some answers. Let us know, OK?
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Gretch
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Love each other...and take delight in honoring each other.
Hi, I am new here. My name is Susan and I also have 2 boys. My oldest (soon to be 7) and the youngest is 4 1/2.
My 4 1/2 is PDD and ODD! What a combination!! It is a tough job compared to those who have "normal" children. Everyday is a challenge for us. He attends a HeadStart cl*** and an IU 4 cl*** as well as Wrap-Around Services. All have been wonderful! He is on meds now, but soon to be evaluated by a psychiatrist to determine if he needs it or if a change needs to be made.
I cried reading these posts because at the present time I have no one to chat to about this and really don't have the time to go to any support groups since we are self-employed, 2 kids, mom and wife stuff, and I will be going back to school for Elementary Education/Special Education.
I would love to chat w/ anyone on Instant Messenger just to keep me sane.
Being a mom is hard enough when you have a special needs child, but all children are our gifts from above.
Hey frazzledmom--dont ! we're here to listen. I'd love to be around more often, but I work full time away from home and, as you know, its full time for ANY mommy when you're at home.
I sure do hope we can get a mighty thread going here--if anyone needs to vent or whatever just go on and do it.
We were chosen for a difficult but wonderous job when we were chosen to be mommies of our kids. But sometimes its tough--so , ANY mommies who want to in and chat or learn or offer advice--lets do just that.
frazzledmom--make sure you take some time for you. Its SO hard to give yourself permission to do that, I know, but you must. And CONGRATULATIONS to you on going back to school. Thats great.
My son used to write things on walls too. I still have faint happy faces on some of the walls that just wouldnt come off. They make me smile now.
Keep all writing utensils, even crayons, out of reach, locked away. It seems extreme, but he will have to use them only under supervision. Make him clean the wall--he is old enough to spritz a cleaner (under your watchful eye) or grab a soapy washcloth to wash the wall.
Make him put away his clothes too! (I did this to my mom when I was about 4--except I threw my clothes out the WINDOW!) Even if he doesnt fold them well, make him put them back.
If your son is any thing like my son was, there will be s, and you will just want to do it yourself, but dont. Start teaching him consequences now. I didnt start so young (although I did make him clean the walls) and now he thinks he runs the place. LOL
(Well, he does, but dont tell him that! *smile*)
I have triplets two boys 1 girl. My two sons have adhd diagnosed by a nuerologist. My son Ian also has sensory integration bordering aspergers syndrom. A lot of time he likes to play alone he is so smart its scary he has a photographic memory like a steal trap. He remembers things from when he was 1 . They are in kindergarten but was tested for reading is from 1st grade to third grade level. He has problems with his fine motor skills. We do have him on ADHD medications 1 a day concerta works well for him really s with attention. He goes to occupational therapy at childrens hospital for 1 hour a week. the school gives him 1/2 hour a week. He still has problems relating with other children , he likes to do what he wants to plus all the kids in his class are basically too young on his level for him . He thinks like a n older child. He is very sweet though but the sensory things can make him very because he cant take noisy places but its a lot better than it has been. He has problems with eating depending on the texture of the food and things. He would rather not be dressed by the end of the day he wants out of his cloths his body cant handle them anymore.
He takes in everything around him and knows what everyone is supposed to be doing in class because his mind is like a computer.
If anyone would like to speak through email feel free to contact me on the board and Ill send you my email address. Kimjust remember we are all these kids have to stand up for them so for all the things they will need in school and hang in there its tough.
FM--you WILL keep up with all these things--You will because you have to. It seems overwhelming now, and it will be a challenge, but Brett needs you, and like any other child, you will adapt and provide for that child. Really, its as simple as that. Read, research, ask questions and go with your gut. YOU know your child better than anyone, and you will know whats best.
Kim-triplets! WOW. thats a handful in itself--add a challenge and boy that must be work. But I'm glad you found something that s him. I opted not to use medication for my son. In preschool they suggested I get Ritalin for my son, and I am so glad I didnt. He was way too young in my opinion, and it seemed to me they just wanted him to have medication to make him easier FOR THEM to deal with. They are the supposed experts and they couldnt handle him--so I pulled him and sent him to another school--he had to travel 2 hours there and back every day, but it was worth it!
All I can tell you is trust your instincts--dont be afraid to ask the doctors questions or challenge their opinions--THEY ARE NOT ALWAYS RIGHT!
Find support groups in your area, they are a wealth of information.
I didnt want to do medication at first but with Ian his sense of danger was non existant because he couldnt concentrate at all. I went to one preschool and the boys were too disrupted there. So we moved them but after my son broke his arm from climbing on a windowcill and fell down and ended up shattering his elbow and ended up with a rod in his arm and all. We tried ridilin but it made him mad all the time. We tried adderall and he ended up sitting in a corner and couldnt function , we tried dexadrine and there were to many highs and lows because he had to take that twice a day. The concerta is good for him its once a day and hes off of it by dinner time. I wish that he wouldnt be so bouncy but its bettter than him not ing at all. He still has some problems in school concentrating but hes getting better at it. The sensory issues are tough because when it gets noisy its tough for him to concentrate, they have a time out space for him to go sit and collect his thoughts, Im on top of them at school and will always continue to because I will not sit by and wait. I know medications are not right for everyone but in my opinion and the doctors we made a mutal decision and its worked well for both of them . MY other son doenst have the sensory or anything but has problems with the fine motor skills but if thats the worse I will take it.
I just take each school year one step at a time for all three. They are in kindergarten I kept them back and now Im wishing I didnt because last year Ian was having a really tough time and they said I should wait and all three were having tough time so i gave them a extra year in preschool . I wish I hadent because now Ian is bored and is way ahead of the kindergarteners now and they got him 2nd grade reading books to do while the others in his class are learning too read. My other two cant read yet but they are working on it.
Alls I can say for all of us is to just hang in there be advocates for our kids and get support from all of us for each other when needed.
Autism/Aspergers
s.
d to meet you.
ing for the services he needs.
Sam has a few different diagnoses, but none stops him from getting services he needs, though I think he needs more of what he gets. I imagine it is kind of frustrating without a for sure DX to work with. I hope the tests, which I have no experience with, get you some answers. Let us know, OK?
! we're here to listen. I'd love to be around more often, but I work full time away from home and, as you know, its full time for ANY mommy when you're at home.
in and chat or learn or offer advice--lets do just that.
! You're right is difficult, but for me to take time out for myself is almost impossible! Or do I when I am on the net? LOL
Anyone with 
s, and you will just want to do it yourself, but dont. Start teaching him consequences now. I didnt start so young (although I did make him clean the walls) and now he thinks he runs the place. LOL 
s with attention. He goes to occupational therapy at childrens hospital for 1 hour a week. the school gives him 1/2 hour a week. He still has problems relating with other children , he likes to do what he wants to plus all the kids in his class are basically too young on his level for him . He thinks like a n older child. He is very sweet though but the sensory things can make him very 
because he cant take noisy places but its a lot better than it has been. He has problems with eating depending on the texture of the food and things. He would rather not be dressed by the end of the day he wants out of his cloths his body cant handle them anymore. 
ing at all. He still has some problems in school concentrating but hes getting better at it. The sensory issues are tough because when it gets noisy its tough for him to concentrate, they have a time out space for him to go sit and collect his thoughts, Im on top of them at school and will always continue to because I will not sit by and wait. I know medications are not right for everyone but in my opinion and the doctors we made a mutal decision and its worked well for both of them . MY other son doenst have the sensory or anything but has problems with the fine motor skills but if thats the worse I will take it.
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